Monday, February 24, 2014

Frustrated

This post is about a week behind in publishing, but it has been crazy in our household the past few days!  First I was sick, then all kids ended up with pink eye, and we ended it all with a little touch of the stomach flu.  Lovely!!!
I'm glad I was delayed in writing though, because it gave me a chance to calm down a bit and recompose myself before going on a rant. 
Little girl had a rough week and pulled quite a bit on both of her brows again.  It always makes me a little upset and sad when she has a bad episode but I try to hide it the best I can so she doesn't feel bad about it.  There wasn't anything in particular that triggered it, unless her eyes were getting itchy from the pink eye and one thing led to the next... But what was most frustrating is that she deliberately took her gloves off and went back to bed without them TWO nights in a row!  I know she has a hard time falling asleep sometimes so we take extra time to rub her back until she's relaxed.  But when she wakes up in the middle of the night it's impossible for me to help her unless she tells us.  We've told her many times to just come in our room if she's having a rough night and we won't get mad at her, we're here to help her.  But, it just goes to show how powerful trich can be, and how it literally takes over and in a matter of 5 minutes, all the hard work goes down the tubes.
Prior to this episode she had been doing OK, mostly just pulling the lashes.  I rarely even notice it anymore because I think I've gotten used to the way she looks without them.  Her brows were almost completely grown back.  We've been on a gluten free diet, going on 2 months now.  I've read that it can take up to 6 months for the gut to heal from any gluten damage so I'm not completely giving up on it yet.  She is still on the pro biotic and NAC daily.  I'm making a second attempt to give her the Calm PRT, which is a supplement to calm her down before bed.  Since she is waking up at night, I'm hoping this will help her stay asleep.  The problem with it is that it tastes horrible.  It's in capsule form, and since she can't swallow it I have to break it open and mix it with something.  I've tried ice cream, applesauce, and juice and no matter what you can taste it.  I told her she's just going to have to suck it up and chase it down with milk.  So far she is being a little trooper about it.
Coming up we have a few appointments with Miss Brigitte and I think we should see the ND again to get an update from her as well.  Updates to follow!

2 comments:

  1. Crossing my fingers for good results in the future. Sorry for the frustration. Always an up and down with trich...

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  2. Thanks Annelise! It really is a trichy thing! Thanks for talking me through it, it helps to hear your perspective on it :)

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